Advocating
for Your Child
General tips
Remember -- you are the primary decision-maker for your child. No
changes in your child's placement or services should take place without
your approval, except in an emergency situation.
You are a
member of the team. Work with the people who work with your child.
Your success as an advocate for your child depends on working with
others.
Be confident
about your abilities and your rights; you know your son or daughter
better than anyone else.
Talk with other
parents to discuss strategies, common problems, and work for
solutions. You are not alone.
Read about your
child's special needs. Talk with professionals and other parents to
learn as much as you can. Try to have a complete understanding of your
child's special education needs.
Remember your
child's strengths. Try to keep things on a positive level.
Use the
knowledge and skills you already have. Read about related issues,
such as advocacy, communications and organizational skills,
negotiations, and conflict resolution.
Keep up-to-date
on state and federal laws governing education and special education.
Participate in a workshop to learn your rights and your child's rights.
Become familiar with the basic terminology and acronyms used in
education.
Keep records
Be willing to
create a paper trail. Develop a file system to organize all your
child's records, your notes, and communications including letters. Keep
copies of papers given to you at school meetings.
Write down your
child's accomplishments. Keep notes about your concerns, questions,
and answers.
Keep notes on
phone calls and visits, and keep copies of all letters and records.
Keep a meeting log, noting the dates and names of people involved. It is
a good idea to confirm in writing what was discussed in the phone call.
Follow up phone
conversations and subsequent meetings with letters that repeat what
you have agreed to.
Whenever you
write a letter, make sure you explain your position, your
understanding of their position, what you expect to happen and who will
do it, and your timeline for a response.
Date and keep
copies of your child's work. Keep copies of homework, tests,
drawings, and writing samples.
Before the team
meeting
Be sure to have
a pre-assessment meeting. Know what assessments will be done and who
will do them. Ask for other assessments if you think they are necessary.
Think about
your child: What can she do? What does she contribute to your
family, your community, her school? What are your dreams for her when
she is in her 20s? What do you want the school to provide?
Write down your
ideas and give them to the team. It is your assessment of your
child.
Ask your child
what he would like to learn next year, what kind of help he thinks he
needs. He may be interested in something or have some good ideas.
Ask for copies
of all your child's records, and review them before the team
meeting. Ask for summaries of assessments before the team meeting. Read
them carefully, and make notes of the things you wish to discuss, and of
any questions you may have. It is your right under the law to ask for
explanations in terms you understand.
At the IEP team
meeting
You have a
right to invite anyone to attend the IEP team meeting with you.
Bring a friend, family member, or another parent for moral support. This
person can take notes and discuss the meeting with you.
Invite
professionals who know your child, such as an evaluator,
psychologist, or therapist. If they can't come, ask them to contact the
team chairperson and send a report.
You are also a
professional. Dress appropriately, and look as professional as
possible. Stand straight, shake hands firmly, and maintain eye contact
as you are introduced to the other participants. If no one begins the
introductions, do it yourself. Speak clearly, and maintain eye contact
while you are talking.
Sit with the
other team members. This shows that you are part of the decision
making. If you can, sit between people with power. Try to avoid having
your side and their side of the table. It sets up sides rather than
focusing on the joint effort.
Arrive
promptly. By being on time or a few minutes early, you will
demonstrate that you consider this meeting to be important, and that you
are ready to conduct business.
Make a note of
those present so you can compare the names with the attendance sheet
on the individual education plan (IEP).
Be as specific
as possible in discussing your child's needs and abilities. Be
positive. Be clear. Make positive statements, such as "I expect. I
understand. My child needs." There is less chance that other people
will misunderstand what you say. You will feel more confident, and be
more effective.
Stick with the
issue at hand -- your child's education. Don't be sidetracked by
irrelevant issues, such as your past experiences or the school's lack of
funds. You are discussing an individualized education to meet your
child's unique needs.
Remain as
friendly as possible. Separate the people from the problems. Don't
deal in personalities.
Remember that
understanding the other person's viewpoint is not agreeing with them,
but shows that you are paying attention, are interested in what they
have to say, and are willing to work with the team.
Feel free to
ask questions. Ask for clarification of anything you don't
understand.
Be flexible enough to accept minor revisions, but be firm about
the major issues.
It may not be
possible to finish all the business at hand in one session, even
when things are going smoothly. It's best to reconvene the team the next
day or a few days later to stay fresh, rather than rush to finish.
Feel confident
enough to conclude the meeting if the situation looks hopeless.
Don't waste your time. Tell the other team members that you will attend
another meeting when they are ready to negotiate in good faith.
In your child's
program
Maintain close contact with your child's teacher. Some families
have regular meetings, some have a daily notebook, and some have regular
telephone calls. Share information and suggestions. Be supportive.
Listen to the teacher's feelings and ideas, and involve him where
appropriate.
If you think
teachers or other team members are doing a good job, tell them.
Thank teachers and other members of the team, including the principal
and special education director, when they have done something you
appreciate.
You've known
your child for a long time. If you've discovered hints that help
your child learn, share them. Offer to help teachers and others adapt
materials or programs.
Remember that
other people such as the school bus drivers, janitors, lunchroom
workers, and secretaries may know and help your child in informal ways.
Get involved in
your child's school. Join the PTA, go to school plays, volunteer in
the library. The more people see you, the better you will get to know
each other. This sometimes makes it easier to work together for your
child.
Go over your
child's IEP every few months. Are the services stipulated in the IEP
being provided? Are you satisfied? Is your child happy?
Talk with your
child's teacher or liaison if you have any questions, or if there
are any problems.
If the IEP is
not working, ask for a meeting of all the people involved. If you
feel it is necessary, ask for a team meeting to change the IEP. You may
do this at any time.
If problems
arise
If you feel the
school is not following the IEP you signed, speak up. Remember --
you are advocating for your child. If you don't do it, no one will.
First, talk
with your child's teacher or liaison to see if you can work out the
problem. Sometimes, a problem is a simple misunderstanding, and can
be resolved by asking questions or explaining what you expect. Remember,
you are a member of the team. If possible, work cooperatively with other
team members to resolve problems.
If this does
not work, call and/or write a letter to your ARD team chairperson, explain
the problem, and ask that specific actions be taken to resolve it. Send
a copy to the school principal and special education administrator.
Remember to set your timelines for responses and/or action. Don't let
time run away. Your child is the one losing out.
Call the team
chairperson three days after you mail the letter, and ask what has
been or will be done about the problem. Ask that the school establish
specific steps toward resolving the problem.
If the team
chairperson is not able to solve the problem, contact the special
education director. Ask that quick action be taken to resolve the
problem. If necessary, contact the superintendent and your school
committee.
If you cannot
reach an agreement with your school system, request mediation from the
Department of Education. This is less formal, and not as
adversarial, and costly as a hearing.
If all else
fails or if the problem is especially serious, request a due process
hearing. While an appeals hearing may prove to be costly and time
consuming, it does have the advantage of giving you and your child a
chance to state your grievances before a qualified and impartial hearing
administrative law judge who is required to make a clear-cut decision.
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