 |
|
Listing
of Resources
Resources
for Families - Maryland
Children's Mental Health - Disorders
-
General
- Specific Disorders- National
Organizations
Serving Children
with Mental Health Needs
- Education
- National
- Disabilities - National
- Juvenile Justice -
National
- Substance Abuse - National
- Legal - National
- Transition - National
- Other
Special Needs Libraries
Resources
for Families - Maryland
Maryland Coalition of Families for Children's Mental Health
10632
Little Patuxent Parkway, Suite 119
Columbia, MD 21044
410.730.8267
800.607.3637
www.mdcoalition.org
Black Mental
Health Alliance For Education and Consultation, Inc. (BMHA)
2901 Druid
Park Dr., Suite A110
Baltimore, MD 21215
410.338.2642
Children and Adults with Attention Deficit/Hyperactivity Disorder
CHADD
Local Chapters:
| Montgomery
County Chadd, Damascus |
301.869.3628 |
| Greater
Baltimore Chapter Of Chadd, Baltimore |
410.377.0249 |
| Maryland
Mid.Shore Chadd, Easton |
410.479.2556 |
| Harford
County Chadd, Bel Air |
410.569.3532 |
| Eastern
Shore Chadd, Berlin |
410.641.7672 |
| Anne
Arundel County Chadd, Crofton |
410.721.2468 |
| Westminster/Owings
Mills Chadd, Westminster |
410.751.3820 |
| Essex
Satellite Of Chadd, Baltimore |
410.780.4674 |
Depression and Related Affective Disorders Association (DRADA) |
|
Meyer
3-181
600 North Wolfe Street
Baltimore, MD 21287-7381
410.955.4647 - Baltimore, MD
202.955.5800 - Washington, D.C.
www.med.jhu.edu/drada/ |
Resources:
The symptoms of depression and bipolar disorder
(manic-depressive illness) in young people can differ from
adults. Symptoms can be missed if you don't know what to look
for. Persistent unhappiness or moodiness is not normal for
anyone. One way to overcome this problem is to educate teenagers
themselves. This is why DRADA created the pamphlet: I wish I
was never born. I really hate myself
Activities: DRADA has a list of over 60 DRADA support
groups in the Baltimore-Washington area whose leaders have taken
the DRADA leadership-training course. Some of these are for
persons with the illness and some are for family members. |
Families Involved Together |
2219
Maryland Avenue
Baltimore, MD 21218
410.235.5222 |
A
network of parents whose children have emotional, behavioral, or
mental disorders.
|
Learning
Disabilities Association of Maryland, Inc. (LDA.MD) |
P.O.
Box 526
Bowie, MD 20718.0526
800.673.6777 |
|
Maryland
Disability Law Center |
1800
N. Charles Street, Suite 204
Baltimore, MD 21201
410.727.6352
800.233.7201
410.727.6387 (TDD) |
The
MDLC is a public interest law firm that advocates for children and
adults with disabilities. The mission of the MDLC is to ensure
that people with disabilities are afforded the full rights and
entitlements accorded them by state and federal law.
Resources: MDLC has published a handbook that more fully
describes the rights of children in special education and what can
be done if those rights are violated. DLC is committed to ensuring
that the assistive technology needs of children are met. |
Maryland
Developmental Disabilities Council |
300
West Lexington St.
Box 10
Baltimore, MD 21201
410.333.3688
800.305.6441 (within MD)
www.md-council.org/ |
The
Maryland Developmental Disabilities Council advocates for public
policy and supportive practices and opportunities that promote the
full inclusion of all people with developmental disabilities in
community life.
Resources: A comprehensive education program in family support
services, Family NET Works seeks to make family support services
available to unserved families, provide training in best
practices, and raise awareness of family support services. Family
support services assist families caring for children with
developmental disabilities with a range of items and services from
respite care to wheelchair ramps. |
Maryland Mental Health Online |
www.hometown.aol.com/
behavioralscicon/md.html
|
Maryland Mental Health Online, the internet mental health resource for Marylanders. This site was created in response to the need for Marylanders to have up-to-date information on mental health issues, emotional disorders, addictions, and treatment and referral information. |
Mental
Health Association of Maryland |
711
W. 40th Street, Suite 460
Baltimore, MD 21211
410.235.1178
800.572.6426
Maryland Youth Crisis hotline, 800.422.0009
www.mhamd.org
yourchildsmentalhealth.org
MHAMD's public eduaction campaign site to encourage parents to seek treatment for their children |
Resources:
The Kids on the Block is a puppet troupe which offers free
performances across Maryland that explain to elementary
school-aged children how to utilize problem solving skills, why
good mental health is important, and how to identify symptoms of
mental health problems. MHAM's Government Affairs Network consists
of mental health consumers, family members, providers and
concerned citizens who address statewide public policy issues. The
Network advocates on behalf of individuals with mental illnesses
to ensure that humane, effective and affordable services are
available and accessible to those who need them.
|
Montgomery
County Federation of Families for Children's Mental Health
(Contact Maryland Coalition of Families - 301.681.8929 or
888.607.3637) |
Parents'
Place of Maryland |
7478
Candlewood Road
Suite S
Hanover, MD 21076
410.859.5300
www.ppmd.org/ |
Resources:
a calendar of workshops. Downloadable resources on special
education, and information of the Maryland Family Voices -
a statewide grassroots network of families of children with
special health care needs and disabilities that will work in
partnership with Children's Medical Services to improve health
care systems for children with disabilities and chronic illnesses
in Maryland.
|
Federation
of Families for Children's Mental Health |
1101
King Street
Alexandria, VA 22314-2971
703.684.7710
www.ffcmh.org |
FFCMH
is a national parent-run organization focused on the needs of
children and youth with emotional, behavioral, or mental
disorders and their families. The Federation's mission is to:
provide leadership in the field of children's mental health;
address the unique needs of children and youth with emotional,
behavioral, or mental disorders from birth through transition to
adulthood; ensure the rights to full citizenship, support and
access to community-based services for children with mental
health needs and their families; and provide information and
engage in advocacy regarding research, prevention, family
support, education, transition services and other supports
needed by children and their families. |
National
Alliance for the Mentally Ill |
Colonial
Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
703.524.7600
www.nami.org |
Resources:
Includes a section for today's family with children and
adolescents with brain disorders, that includes youth news,
brochures and fact sheets, a reading list, research, depression
awareness, local contacts, and a section on family education and
support as well as custody issues. Also Families on the Brink:
The Impact of Ignoring Children with Serious Mental Illness
and Results of a National Survey of Parents and Other
Caregivers
Local chapters (see under Maryland resources) |
National
Institute of Mental Health (NIMH) |
National Institute of Mental Health (NIMH)
Office of Communications
6001 Executive Boulevard, Room 8184, MSC 9663
Bethesda, MD
301-443-4513
nimhinfo@nih.gov
http://www.nimh.nih.gov/
|
Resources:
The National Institute of Mental Health (NIMH) is a component
of the National Institutes of Health (NIH). NIH is part of the
U.S. Department of Health and Human Services. The NIMH mission
is to reduce the burden of
mental illness and behavioral disorders through research on mind,
brain, and behavior. |
National
Mental Health Association (NMHA) |
1021
Prince Street
Alexandria, VA 22314-2971
800.969.NMHA
800.228.1114 Free brochures
http://www.nmha.org |
Resources:
Includes information on children with emotional disorders, children
in the Juvenile Justice System, youth depression, children and
families, and the State Children's Health Insurance Program
|
National
Mental Health Services Knowledge Exchange Network (KEN) |
P.O.
Box 42490
Washington, D.C. 20015
800.789.2647
http://www.mentalhealth.org/
cmhs/childrenscampaign |
Knowledge
Exchange Network (KEN) was developed for users of mental health
services and their families, the general public, policy makers,
providers, and the media. KEN is a national, one-stop source of
information and resources on prevention, treatment, and
rehabilitation services for mental illness.
Resources: Information about mental health by phone,
electronic bulletin and publications. Includes the Surgeon
General's Report on Child Mental Health |
Parents
Helping Parents |
3041
Olcott Street
Santa Clara, CA 95054
408.727.5775
408.727-0182 (fax)
www.php.com |
The
Family Resource Center- meeting children's special needs through
parents helping parents.
Resources: A resource listing that allows selection by geographic
area, condition, service and language, an extensive list of links
to other sites, disability fact sheets, an adapted equipment
rent/buy list and a library for special needs materials. |
Specific
Disorders - National Organizations
back
to top
Anxiety
Disorders Association of America (ADAA) |
11900
Parklawn Drive, Suite 100
Rockville, MD 20852
301.231.9350
www.adaa.org |
Resources:
Examples - Anxiety Disorders in Children: A Test For Parents,
including questions to help parents know whether they need further
help with their child, as family members often can play an active
role in anxiety disorder treatment.
Also includes fact sheets on Generalized Anxiety Disorder (GAD),
Obsessive-Compulsive Disorder, Panic Disorder, Post-Traumatic
Stress Disorder, Separation Anxiety Disorder, Social Phobia and
Specific Phobia.
|
Child
and Adolescent Bipolar Foundation |
| www.bpkids.org |
Resources:
Annotated list of books.
Activities: The Child and Adolescent Bipolar Foundation (CABF)
on-line support groups are open to adult members of CABF who are
raising a child or adolescent diagnosed with, or at risk for,
bipolar disorder. These groups offer the opportunity to give and
receive support on-line. |
Children
and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) |
8181
Professional Place
Suite 201
Landover, MD 20785
800.233.4050
301.306.7070
http://www.chadd.org |
Resources:
National Resource Center on ADHD - the first and only online
library dedicated to research and science-based resources and materials
on AD/HD.
The online library includes books for parents and teachers, resources
for adults with AD/HD, and reference books and scientific articles
for health and education professionals and researchers. Summaries
of all resources are provided, and full text articles are available
on the most relevant topics in the diagnosis of AD/HD, treatment
options, school challenges and guidelines, and parenting tips.
Click here for online library: www.help4adhd.org/library.cfm
Print materials from CHADD include: Attention Deficit Disorder:
What Parents Should Know, Attention Deficit Disorder: What Teachers
Should Know, Attention Deficit Disorder: Beyond The Myths, What
is meant by "Learning Disabilities"? Also fact sheets
and a position paper on school discipline and AD/HD and the Juvenile
Justice System.
Advocacy: Continues to work to have AD/HD fully recognized
as a disorder under the Individuals with Disabilities Education
Act (IDEA). |
FRAXA Research Foundation |
45 Pleasant St.
Newburyport, MA 01950
978-462-1866
978-463-9985 (fax)
info@fraxa.org
http://www.fraxa.org
|
Their mission is to support research aimed at treatment for Fragile X syndrome, a genetic disorder with symptoms including mental impairment, attention deficit, hyperactivity, anxiety, unstable mood, and austistic-like behaviors.
Resources: Information about Fragile X, research news and grants, events, advocacy, publications and products, sites and contacts, and a Listserv.
|
LD
OnLine |
The
Learning Project, WETA
2775 South Quincy Street
Arlington, VA 22206
703.998.2600
www.ldonline.org |
Resources:
The interactive guide to learning disabilities for parents,
teachers and children. Resource list includes a number of list
servers.
Activities: Kids Zone has games to learn from and a place
where they are able to speak up for themselves - communicate their
needs to teachers, family members,
and friends. |
National
Attention Deficit Disorder Association |
1788
Second Street, Suite 200
Highland Park, IL 60035
847.432.ADDA
http://www.add.org |
The
National Attention Deficit Disorder Association is an organization
focused on the needs of adults and young adults with ADD/ADHD, and
their children and families, seeking to serve individuals with
ADD, as well as those who love, live with, teach, counsel, and
treat them.
Resources: Research, resources, information on treatment.
Info on ADD coaching, a supportive, practical, concrete process in
which you and the coach work together to identify and pursue your
goals. The primary purpose of coaching is to help the individual
with ADD develop the structures necessary to function effectively
and to teach practical approaches to the challenges of daily life.
Also includes two sections that are written specifically for and
about kids with ADD and teens with ADD including A Teenager's
Guide to ADHD. |
Depression and Bipolar
Support Alliance (DBSA) |
730
N. Franklin Street, Suite 501
Chicago, IL 60610-3526
(800) 826.3632
www.dbsalliance.org |
Resources:
Includes a brochure for teens about depressive illnesses, Just a
Mood . . . or Something Else? which includes a check list. There
is a similar packet for parents and information on the toll free
Information Line.
DRADA is listed in the Maryland resources, and has support groups. |
Obsessive-Compulsive
Foundation |
337
Notch Hill Road
North Branford, CT 06471
203.315.2190
www.ocfoundation.org |
Resources:
Info on OCD in children & related disorders, treatment
components, and a video on How to Recognize and Respond to
Obsessive-Compulsive Disorder in School Age Children. Also
includes resources on Posttraumatic Stress Disorder (PTSD), OCD
& Multi-Cultural Issues, Children with Oppositional Defiant
Disorder, Self-injury in Adolescents and how to advocate for your
child. |
Prader-Willi Syndrome Association (USA) |
5700 Midnight Pass Rd.
Sarasota, FL 34242
800-926-4797
941-312-0142 (fax)
pwsausa@aol.com
http://www.pwsausa.org
|
PWSA(USA) is a national membership association dedicated to Prader-Willi syndrome, a genetically based developmental disability. Characteristic behavior problems of the syndrome include temper tantrums, violent outbursts, obsessive/compulsive behavior, etc. The organization provides a national and international network of information, support services, and research endeavors to meet the needs of affected children and adults and their families.
Resources: PWSA and its chapters, PWSA policy and position statements, info on Prader-Willi syndrome, publications and products, research, personal stories, family support, and conferences. |
The Selective Mutism Foundation, Inc. |
PO Box 450632
Sunrise, FL 33345-0632
PO Box 13133
Sissonville, WV 25360-0133
selectivemutism1@aol.com
www.orgsites.com/fl/
selectivemutismfoundation
|
A non-profit, public service organization dedicated to Selective Mutism (SM) which is a childhood anxiety disorder with a persistent failure to speak in select social settings.
Resources: About SM, activities, consultation on special education issues, sensitivity training, healthcare providers, research, and related links. |
Serving
Children with Mental Health Needs
back
to top
Center For Effective
Collaboration, American Institutes for Research |
1000
Thomas Jefferson Street, N.W. Suite 400
Washington D.C. 20007
202.955.5400; 888.457.1551
www.air.org/cecp |
Improving
Services to Children and Youth with Emotional and Behavioral
Disorders
Resources: Articles on Behavioral Assessment And Behavior
Intervention Plans, Conducting a Functional Behavioral Assessment
and Creating Positive Behavioral Intervention Plans and Supports.
Videos available also on Functional Assessment.
Activities: Discussion groups. List servers including one for
Families With Children with Emotional/Behavioral Disorders. |
Council
for Children for Behavior Disorders |
University
of Wisconsin - Whitewater
800 West Main Street, WH 3050
Whitewater, WI 53190
262.472-5378
www.ccbd.net/index.cfm |
CCBD
is an international professional organization committed to
promoting and facilitating the education and general welfare of
children and youth with behavioral and emotional disorders.
Resources: position papers, white papers |
Georgetown
University Child Development Center |
National
Technical Assistance Center for Children's Mental Health
Georgetown University Medical Center
3307 M Street, N.W. Suite 401
Washington. D.C. 2007
202.687.5000
www.dml.georgetown.edu
/gucdc |
The
GUCDC was established to improve the quality of life for children
with special needs and their families. A division of the
Department of Pediatrics, Georgetown University Medical Center,
GUCDC is founded on an interdisciplinary approach to Service,
Training, Research, Community Outreach, Public Policy, Mediation
and Conflict Management.
Resources: Communities Can!, research that allows
members of a community to offer assistance and ask for help. Also
includes Advocating For Ourselves (available also in
Spanish), a program that supports families and individuals to new
levels of advocacy. |
Portland
State University
Research & Training Center on Family Support & Children's
Mental Health |
P.O.
Box 751
Portland, OR 97207
503.725.4175
www.rtc.pdx.edu |
The
Center's activities focus on improving services to families whose
children have mental, emotional or behavioral disorders through a
set of related research and training programs.
Resources: Extensive reading list on children's mental
health issues. Includes a downloadable report on Early
Identification Strategies and Interventions in Children's Mental
Health. With University of South Florida produce Data
Trends, a series of one-page briefs addressing current themes,
summarizing recent articles, or presenting new developments in the
field of children's mental health. |
University
of South Florida Research & Training Center
for Children's Mental Health |
Louis
de la Parte Florida
Mental Health Institute
13301 Bruce B Downs Blvd.
Tampa, FL 33612
813.974.6257
http://www.htrtckids.fmhi.
usf.edu |
The
Research and Training Center focuses on the development and
implementation of public policy in Children's Mental Health, by
providing a framework for understanding the features of policy and
its implementation that affect the likelihood of it successfully
achieving its purposes.
Resources: A Conceptual Framework for Developing and Implementing
Effective Policy in Children's Mental Health by Robert Friedman,
which presents a conceptual framework, based on the best available
research, to guide thinking about the relationship between policy
development, policy implementation, systems of care, and outcomes
in children's mental health. |
Education
- National
back
to top
U.S.
Department of Education
Office of Special Education and Rehabilitative Services |
| www.ed.gov/offices/OSERS |
Resources:
A Guide to the Individualized Education Program, designed to
assist educators, parents, and State and local educational
agencies in implementing the requirements of Part B of the
Individuals with Disabilities Education Act (IDEA) regarding
Individualized Education Programs (IEPs) for children with
disabilities, including preschool-aged children. Also available is
Safeguarding Our Children: An Action Guide, jointly developed by
the Departments of Education and Justice, to help schools and
communities prevent school violence. It emphasizes early
intervention and prevention, and the importance of teamwork among
educators, mental health professionals, parents, and students.
Downloadable. It follows up on the 1998 Early Warning, Timely
Response: A Guide To Safe Schools, which offered guidelines for
school safety. |
Office
of Special Education Programs |
www.ed.gov/offices/OSERS/
OSEP/index.html |
This
office, under the Office of Special Education and Rehabilitative
Services, has primary responsibility for administering programs
and projects relating to the free appropriate public education of
all children, youth and adults with disabilities, from birth
through age 21. The bulk of special education funds is
administered by OSEP's Monitoring and State Improvement Programs
division, which provides grants to states to assist them in
providing a free, appropriate public education to all children
with disabilities. The early intervention and preschool grant
programs provide grants to each state for children with
disabilities, ages birth through five. |
Family
& Advocates Partnership for Education |
952-838-9000
952-838-0199 (fax)
TTY: 952-838-0190
www.fape.org |
The
Partnership is a project, connected to the PACER center, which
aims to inform and educate families and advocates about the
Individuals with Disabilities Education Act of 1997 and promising
practices.
Resources: A thorough resources section on topics related to the
education of children with mental health problems, list of
resource persons with knowledge of IDEA, Spanish and Vietnamese. |
National
Mental Health & Education Center |
National
Association of
School Psychologists
4340 East West Highway
Suite 402
Bethesda, Maryland 20814
301.657.0270
http://www.naspweb.org/
center |
The
National Mental Health and Education Center works to provide
support for children and families and improve the professional
training and practices of school psychologists and pupil service
providers. It is dedicated to ensuring children receive the
optimum services in their schools and communities psychologists.
Provides a nationally recognized certification system, promotes
children's rights, produces videos, and sponsors conferences.
Resources: Safe schools, crisis prevention, violence
prevention resources. Model School-Based Mental Health Programs
That Make A Difference
Advocacy: Steps on advocacy for children, legislative
updates etc. |
National
Center for Learning Disabilities |
381
Park Ave. South, Suite 1401
New York, NY 10016
212.545.7510
888.575.7373
http://www.ncld.org |
The
National Center for Learning Disabilities provides national
leadership in support of children with learning disabilities by
providing information, resources, and referral services;
developing and supporting innovative educational programs,
seminars, and workshops; conducting a public awareness campaign;
and advocating for more effective policies and legislation to help
individuals with learning disabilities.
Resources: Tips for parents of LD children, for example Turning
Homework Problems Into Opportunities and Ways To Help Your
Child Become A Better Reader. Resources too for teachers like A
Checklist for the Classroom Teacher and Ongoing
Professional Development for Teachers |
Parent
Advocacy Coalition for Educational Rights Pacer Center |
8161
Normandale Boulevard
Bloomington, MN 55437-1044
952-838-9000
952-838-0199 (fax)
TTY: 952-838-0190
www.pacer.org |
PACER
is a nonprofit organization that helps parents and families of
children with disabilities.
Resources: A wide variety of resources including Employment
strategies for youth with disabilities. Does My Child Have
an Emotional or Behavioral Disorder? What is a Functional
Assessment? Links to the Technical Assistance Alliance for
Parent Centers, funded by Department of Education. |
Disabilities
- National
back
to top
National
Information Center for Children & Youth with Disabilities |
P.O.
Box 1492
Washington D.C. 20013
800.695.0285
www.nichcy.org |
Resources:
Lists of publications, disability fact sheets, and a news Digest
series which takes an in-depth look at current disability issues
such as parent concerns, education, legal issues (including IDEA),
assessment, and inclusion. This series offers answers to questions
and concerns that parents and people who work with parents or
children with disabilities typically have. Student Guides and
Technical Assistance Guides (Spanish too).
Also includes Maryland State Resources, including State
Agencies/Organizations, Protection and Advocacy,
Disability-specific Organizations, Technology-Related Assistance,
Parent Organizations and Other Disability Organizations |
National
Technical Assistance Center for State Mental Health Planning |
66
Canal Center Plaza, Suite 302
Alexandria, VA 22314
703.739.333
703.548.9517 (fax)
www.nasmhpd.org/ntac |
Resources:
News and information about its technical assistance and training
activities, posts information about its meeting materials,
research and publications, and offers key players in the mental
health community the opportunity to share ideas and experiences
around state mental health planning. |
Office of
Juvenile Justice & Delinquency Prevention |
810
Seventh Street, NW
Washington, DC 20531
202.307.5911
202.307.2093 (fax)
askjj@ojp.usdoj.gov |
|
Legal
- National
back
to top
Bazelon Center for Mental
Health Law Center |
1101
Fifteenth Street NW,
Suite 1212
Washington D.C. 20005-5002
202.467.5730
www.bazelon.org |
The
Bazelon Center is a partnership of lawyers, policy advocates,
mental health experts, and mental health consumers. Bazelon Center
attorneys provide legal advocacy for the civil rights and human
dignity of people with mental disabilities. The Bazelon Center is
not able to handle individual requests for information or
assistance.
Resources: Advocacy Resources on Children with
Disabilities, dealing with custody issues and Medicaid for
children with mental health needs. The site offers an on-line
bookstore, updates, alerts and advocacy resources, and links to
other advocacy resources that can offer assistance to persons with
mental or developmental disabilities. |
back
to top
|
